Has the responsibility to make specific recommendations on such important topics burdened or irritated you?
FJB: Both. Work isn't always fun and games. Intensive discussions like these take a lot of time. I sometimes had a weekly meeting in Berlin or elsewhere and was heavily involved in writing the statements. But I have pleasant memories of a trans- and interdisciplinary collaboration that I had never experienced as intensely before. The Expert Council is a multi-professional expert panel of natural, humanities and social scientists. Collaboration has developed across specialist boundaries and even beyond the Council.
Do the German Ethics Council and their expertise receive enough attention?
FJB: There is a jungle of policy-making bodies in Germany. Competition weakens the effect of the recommendations. For example, three federal ministries – the Federal Ministry of Family Affairs, the Federal Ministry of Justice and the Federal Ministry of Health – recently set up a working group to advise on the future of Section 218 of the German Criminal Code (StGB). Abortion is now undoubtedly a subject that falls under the jurisdiction of the German Ethics Council, which was founded to advise politics and the public on life science and medical ethics issues. However, these ministries wanted to see certain results for political reasons. Such calculated competition naturally weakens the effect of the German Ethics Council which shouldn’t be the case. Another problem is that the Council deals with issues beyond its original remit, for example climate justice. And there are so many pressing problems in the health sector that fall under its original responsibility.
Can you tell us more about these problems?
FJB: We are an aging society and are heading for everincreasing healthcare costs. There are also many problems in the nursing sector. Long-term care insurance is completely underfunded and requires fundamental reforms. We are on the verge of a total collapse of our care system in the coming years. I would strongly advise that the new council term addresses this structural issue.
Do recommendations from advisory boards such as the Council have an impact on science and research?
FJB: Not enough. Opportunities are often missed. In 2013, even before my time, the German Ethics Council wrote a well-founded statement on the question of genetic diagnostics which foreshadowed many developments. More and more genetic markers and hereditary diseases are being identified. This has a dramatic impact. Many fetuses never see the light of day due to the new technological possibilities. These are hidden eugenic dynamics. We Germans should actually be particularly sensitive to the topic due to our experience in National Socialism. The German Ethics Council has formulated recommendations for the protection of unborn life to the legislature and also to scientific research. However, corresponding research projects were not approved. There is no money for them. In my view, this is a research policy scandal.
Does that mean you are against prenatal diagnostics?
FJB: I am not generally against it. Prenatal diagnostics can have positive effects when combined with therapeutic options. But we are increasingly diagnosing without a therapeutic consequence – which ultimately leads to automatic termination according to questionable criteria. We are ultimately judging the value of a life here – however the legal context might address it. We don’t say anything about the worth of the child’s life, only whether a mother might be reasonably expected to bear this child.
How effective do you think the statements you have co-written are?
FJB: There are examples where the legislature has completely ignored the recommendation of the Ethics Council, as in prenatal diagnostics. And there are examples where
the recommendations have been implemented exactly as proposed, such as the vaccination strategy. In summary, I would say: Efficacy ranges from 0 to 100.